Last modified November, 2003.
Last modified November, 2003.
Disability, Disease and Syndrome Resources
Diseases AIDS/Immune Deficiency Alzheimer's Disease Discussion Groups Diabetes Parkinson's Disease Neurological Issues Brain Injury Psychological Disorders Anxiety Disorders Eating Disorders Obsessive-Compulsive Disorder Post-traumatic Stress Disorder Disability and Syndrome Resources
ARC of the U.S.A.. http://thearc.org/ " This online resource has been developed to provide you with easy access to facts, contacts, and news updates that will help you learn more about our constituents and our advocacy."
Avenues http://www.avenuesonline.org/index.html "Avenues for independence celebrating 50 years of services for individuals with developmental disabilities."
Best Buddies http://www.bestbuddies.org "Best Buddies is a non-profit 501(c)(3) organization dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment."
Colorado Cross Disability Coalition http://www.colorado2.com/ccdc/ "Ensuring full participation of all people with all types of disabilities by any means necessary. The Colorado Cross-Disability Coalition is a statewide organization which is run by and for people with disabilities."
Chromosome Deletion Outreach http://www.chromodisorder.org "Chromosome Deletion Outreach is a non-profit, all volunteer, parent support organization founded in 1992. Our membership consists of individuals, families and professionals seeking information regarding a variety of chromosome disorders. Although our focus in the past was deletions, we now encompass most types of chromosome disorders: including partial duplications (trisomies), inversions, translocations, rings and sex chromosome disorders."
Developmental Delay Resources http://www.devdelay.org "A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs."
Developmental Disabilities Resource Centers http://www.ddrcco.com/ " The Center's Mission is "...to provide leading-edge services that create opportunities for people with developmental disabilities and their families to participate fully in the community." Quality, dignity and choice are the values of DDRC."
Developmental Disabilities Resource Center (Colorado) http://www.ddrcco.com/ "Developmental Disabilities Services (DDS) is the State office that provides leadership for the direction, funding and operation of community based services to persons with developmental disabilities within Colorado."
DOOR Disability Opportunity http://www.dooronline.org/ "DOOR Online is dedicated to providing a user-friendly, accessible system of complete, up-to-date, and accurate information for individuals with disabilities, their families, and service providers throughout the state of Colorado."
Dr. Barry Prizant http://murphyandmurphy.com/barryprizant/ Dr. Barry Prizant is recognized internationally for his extensive contributions in research and educational programming for children with Autism Spectrum Disorders (ASD), and related language and social-communicative disabilities in young children.
Doctor Michael Goldberg M.D. F.A.A.P. http://www.neuroimmunedr.com/
Doctor Stanley Greenspan http://www.stanleygreenspan.com/ "Clinical Professor of Psychiatry, Behavioral Sciences, and Pediatrics at George Washington University Medical School.
Practicing child psychiatrist."
Easter Seals http://www.easter-seals.org/ "Easter Seals provides services to children and adults with disabilities and other special needs, and support to their families."
Eastern Colorado Services for the Developmentally Disabled http://www.easterncoloradoservices.org/ "Programs include infant/toddler services, adult community integrated employment, community participation vocational training, sheltered employment, personal and social skills training, residential services (i.e., 24 hour, PCA, host homes, Supported Living Services and Follow Along), family resource services and support services."
Encephalitis Global http://groups.msn.com/EncephalitisGlobal "Encephalitis Global is a free, no charge website, sharing information and support between encephalitis survivors, caregivers and loved ones and, with folks who wish to learn more."
Exceptional Parent Library http://www.eplibrary.com/ "The Special Needs Bookstore."
Family Village http://www.familyvillage.wisc.edu/index.htmlx "We are a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support."
Invisible Disabilities Advocate Web Ring Page http://www.invisibledisabilities.com/rings.htm "Helping people understand chronic, debilitating illness and pain."
LD Online http://www.ldonline.org/ "The leading Web site on learning disabilities for parents, teachers, and other professionals."
March of Dimes http://www.modimes.org "Saving babies together."
Mobility International USA http://www.miusa.org/ "As a US-based national non-profit organization, the mission of Mobility International USA (MIUSA) is to empower people with disabilities around the world through international exchange, information, technical assistance and training, and to ensure the inclusion of people with disabilities in international exchange and development programs."
National Association for the Dually Diagnosed http://www.thenadd.org/ "NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs."
National Center on Workforce and Disability http://www.onestops.info/ "Access for all in workforce development."
National Organization for Rare Disorders, Inc. (NORD) http://www.rarediseases.org/ "Since 1983, working toward the prevention, treatment, and cure of rare "orphan" diseases. "
National Information Center for
Children and Youth with Disabilities http://www.nichcy.org/ "We invite you to: explore our Web site, read our publications and share them with others, let us connect you with resources in your state and in the United States, and call us free of charge to talk with our information staff about your speciaNational Rehabilitation Information Center (NARIC) http://www.naric.com/ "The NIDRR Program Directory describes over 300 research programs working on the cutting edge of disability research."
Savant Sundrome-Wisconsin Medical Society http://www.wisconsinmedicalsociety.org/savant/default.cfm
TASH http://www.tash.org/ "TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm."
Virtual World Congress & Exposition on Disabilities http://www.vwcdexpo.com/ "Welcome Virtual World Congress & Exposition on Disabilities (WCD). The Virtual WCD has been created by H.A. Bruno, LLC to provide a comprehensive forum that educates, informs, brings you the latest news and provides a useful exchange of ideas and products for persons with disabilities and special health care needs, as well as those involved in their care and development."
Assistance and Technology
AbleData http://www.abledata.com/ "... the Premier Source for
Information on Assistive Technology!"
Ability Hub assistive Technonlgy Solutions http://www.abilityhub.com/ "Assistive Technology for people with a disability who find operating a computer difficult, maybe even impossible. This web site will direct you to adaptive equipment and alternative methods available for accessing computers"
Assistive Tech.net http://www.assistivetech.net/ We are a resource for assistive technology (AT) and a link to a wide variety of AT and disability-related information.
Assistive Technology Solutions http://www.assistivetechnologysolutions.com/ "Assistive Technology Solutions strives to enable people with disabilities to achieve their goals by making technology a regular part of their daily lives."
Canine Companions http://www.caninecompanions.org/
"Canine Companions for Independence is a non-profit organization that enhances the lives of people with disabilities by providing highly trained assistance dogs and ongoing support to ensure quality partnerships."
Center for Applied Special Technology http://www.cast.org/ "CAST...is a not-for-profit organization that uses technology to expand opportunities for all people, especially those with disabilities."
Closing the Gap http://www.closingthegap.com/ "Through our newspaper, annual conference, and Web site, Closing The Gap provides practical up-to-date information on assistive technology products, procedures, and best practices."
EASI http://www.rit.edu/~easi/ "EASI is the Premiere Provider of Online Training on Accessible Information Technology for Persons with Disabilities
reaching more than 4,000 people in over 3 dozen countries since 1993."Enable Mart http://www.enablemart.com Our mission is to assist individuals in the search for computer access solutions by locating, supporting, and selling computer hardware, software and related technologies designed for their specific need.
Enabling Devices.com http://enablingdevices.com/ Toys for special children and products for independent living.
Independence Inc. Lawrence Independent Living Resource Center http://www.independenceinc.org/index.htm "Empowering people with disabilities to control their own lives and to advocate for integrated and accessible communities."
The National Center on Secondary Education and Transition (NCSET) http://www.ncset.org/ "The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures."
Recording for the Blind and Dyslexic http://www.rfbd.org/ "The nation's educational library for people with print disabilities."
Rehab Tool.com http://www.rehabtool.com/ "High-tech assistive, adaptive and accessibility aids for children and adults with disabilities and special needs..."
Clothing
FORDE'S FUNCTIONAL FASHIONS, INC.® http://www.fordes.com/ Founder and president of FORDE'S FUNCTIONAL FASHIONS, INC.® , Patricia A. Forde, MA CEAC has dedicated the last 25 years of her business and professional life to two inter-related agenda: making available affordable and attractive clothing and accessories, and meeting the needs of persons with physical disabilities, including aging persons. Since 1990, Pat has worked exclusively to bring functional fashions and accessible lifestyles to persons with limited mobility and special needs.
Grover Gear http://www.grovergear.com/ "Grover Gear was started because of a lack of hard to find products for people with disabilities. Most of the products that you'll find on this web site are unique, hard to find, or individually handmade. "
Personal Touch Health Care Apparel http://www.adaptiveapparel.com/
Professional Fit Clothing http://www.professionalfit.com/ "Provides adaptive clothing and apparel for the disabled. Our special needs clothing company has been providing our fashions to those who are in state developmental centers, intermediate care facilities, group homes, and the physically challenged for over 15 years. Our company specializes in clothing for the disabled such as adult".s,elastic waist pants, wheelchair clothing and much more.
Rolli Moden http://www.rolli-moden.com/ "WELCOME to Rolli-Moden - your new source for clothing that fits and looks good - clothing designed especially to meet the needs of persons in a sitting position. Whether you’re looking for jeans, casuals, suits, or shorts,
Rolli has you covered!"
Wheelchair Jeans http://www.wheelchairjeans.com/
Magazines
Disabilities Monthly Resource Directory: Colorado http://www.disabilityresources.org/COLORADO.html
Disability Resources on the Internet http://www.disabilityresources.org/ "A "wonderfully well-organized site ... for cutting through the morass of disability-related material on the Web" -- Encyclopedia Britannica Internet Guide"
New Mobility http://www.newmobility.com/ "WELCOME to newmobility.com, the Web site for New Mobility Magazine and the leading online resource for Disability Culture and Lifestyle."
Policy
American Disabled for Attendant Programs Today ADAPT http://www.adapt.org/ "There's no place like home, and we mean real homes, not nursing homes. We are fighting so people with disabilities can live in the community with real supports instead of being locked away in nursing homes and other institutions."
American's with disabilities act http://www.ada.gov
National Council on Disability http://www.ncd.gov/ "The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities."
Research
The Disability Research Institute http://www.als.uiuc.edu/dri/ "The Disability Research Institute (DRI) is a partnership between the U.S. Social Security Administration, Office of Disability and Income Security Programs, and the College of Applied Life Studies at the University of Illinois, Urbana-Champaign (UIUC), with the participation of other campus units as well as units or researchers at six other affiliated institutions. The Institute was first announced June 1, 2000, and is supported by a five-year, $5.25 million grant from the U.S. Social Security Administration (SSA). "
National Alliance for Autism Research http://www.naar.org/ The mission of the National Alliance for Autism Research is to fund, promote and accelerate biomedical research and science-based approaches that seek to determine the causes, prevention, effective treatments and, ultimately, a cure for autism spectrum disorders.
Neuro Immune Dysfunction Sydromes Medical Advisory Board and Research Institute http://www.nids.net/ The NIDS Research Institute, which consists of the NIDS Parents Coalition and the NIDS Scientific Board, is dedicated to increasing the public's awareness of the likely connection between neuro-immune and/or auto-immune dysfunction and conditions such as Autism, ADD, Alzheimer's, ALS, CFS/CFIDS, MS and other immune- mediated diseases.
Office of Special Education and Rehabilitation Services OSERS http://www.ed.gov/about/offices/list/osers/nidrr/index.html "The National Institute on Disability and Rehabilitation Research (NIDRR) provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. All of our programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood."
GladNet http://www.gladnet.org/ "Global Applied Disability Research and Information Network on Employment and Training."
Institute for Disabilities Research and Training Inc. http://www.idrt.com "IDRT is dedicated to improving the lives of people with disabilities through research and development, training, technical assistance, and advocacy. Although our work benefits people with all disabilities, we specialize in research and development efforts on behalf of children and adults who are deaf and hard of hearing."
National Center for the Dissemination of Disability Research http://www.ncddr.org/ "The National Center for the Dissemination of Disability Research (NCDDR) is a pilot project designed to help NIDDR funded researchers publicize the results of their research."
Angelman Syndrome
Angels Among Us: Angelman Syndrome Information and Resources http://home.earthlink.net/~julhyman/angel2.htm "Welcome to "Angels Among Us" my web site devoted to Angelman Syndrome and the resources that are available to
siblings, families, caregivers, educators and anyone else with
an "angel" in their lives."
Angelman Syndrome Foundation Inc. http://www.angelman.org/ "Angelman Syndrome (AS) has confused the medical community and parents of Angelman children for hundreds of years."
Angelman Syndrome http://www.asclepius.com/angel/ "Information for Families and Professionals." Pages of Angelman links.
International Angelman Syndrome Organization http://asclepius.com/iaso/
"The International Angelman Syndrome Organization (IASO) was founded in 1998 as a world-wide organization of national Angelman Syndrome Associations. Member Countries include: Australia, Belgium , Canada , Denmark , Finland , France, Germany, Ireland, Israel, Netherlands, Norway, Spain, Sweden, United Kingdom, and United States."Realidades sobre el Síndrome de Angelman http://www.asclepius.com/angel/asfin_sp.html
Apraxia-Kids http://www.apraxia-kids.org/ "Apraxia-KidsSM Internet Resources - your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia."
Children's Project http://www.atcp.org/
Northern Colorado Support Group http://www.fortnet.org/ncsg/
Ataxia
National Ataxia Foundation http://www.ataxia.org/ "The National Ataxia Foundation is a nonprofit organization established in 1957 with the primary mission of encouraging and supporting research into Hereditary Ataxia, a group of neurological disorders which are chronic and progressive conditions affecting coordination. There are more than 45 affiliated chapters and support groups throughout the U.S. and Canada."Attention Deficit Disorder
Attention Deficit Disorder http://www.ncpamd.com/adhd.htm
Attention Deficit Disorder Association http://www.adda-sr.org/MAININDEX.htm "ADDA-SR is a non-profit organization. Their mission is to: Provide a resource network."
Attention Deficit Disorder Association http://www.add.org/ " Serving the needs of people with ADD/ADHD since 1989"Children and Adults with Attention-Deficit/Hyperactivity Disorder
http://chadd.org/ "Through collaborative leadership, advocacy, research, education and support, CHADD provides science-based, evidence-based information about AD/HD to parents, educatiors, professionals, the media and the general public."One ADD Place http://www.oneaddplace.com/
"A virtual neighborhood consolidating in ONE PLACE information and resources
relating to Attention Deficit Disorder (A.D.D.), AD/HD and Learning Disorders (LD)."Autism
ABA Educational Resources http://www.abaresources.com/index.htm "This site is devoted to providing ABA resource materials to children involved in an ABA program."
Autism Diet.com http://www.autism-diet.com/ "Autism-Diet.com is dedicated to the research of J Robert Cade, MD and R Malcolm Privette, PA-C into the causes and treatment of autism."
Autism Coach http://autismcoach.com/ "Autism Coach offers products and information to help children within the Autism Spectrum reach their maximum potential."
ANDI http://www.autismndi.com/ "Providing Help And Support For Families Using A Gluten & Casein Free Diet In The Treatment Of Autism And Related Developmental Disabilities"
Autism Online http://www.autismonline.org "The mission of AutismOnline is to connect the parents of newly diagnosed children with autism and professionals working with these children with critical resources, support, and research information in their own language.."
Autisim-PDD Resoruces Network http://www.autism-pdd.net/ " The purpose of this site is to guide you to the key issues associated withspectrum disorders. There is a growing awareness of the nature of autism and the kinds of approaches to diagnosis, treatment and care that are likely to be effective in meeting the needs of autistic individuals and their families."
Autism Outreach, Inc http://www.autismoutreach.org Autism Outreach, Inc. is commited to meeting the individual needs of children with autism in Northern Virginia, Maryland, and the District of Columbia.
Autism Research Institute http://www.autism.com/ari " The Autism Research Institute (ARI), a non-profit organization, was established in 1967. ARI is primarily devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood."
Autism Society of America http://www.autism-society.org "The Autism Society of America was founded in 1965 by a small group of parents working on a volunteer basis out of their homes."Autism Society of America Colorado Chapter http://www.autismcolorado.org/asacchome.htm Nine area chapters serve the state of Colorado.
Autism Treatment Center of America http://www.son-rise.org/ "The teaching staff of The Autism Treatment Center of America™ combines over 100 years experience of working with children using The Son-Rise Program®. We have worked with more than 22,000 parents and professionals from around the world — delivering proven results for over 25 years."
AutismTreatment.INFO http://www.autismtreatment.info/ "Empowerment- this one word is our message about Autism. We chronicle our experiences with Autism and Autism treatment to provide you with an example of what CAN be done and how WE have done it."BRIDGES For Children with Autism http://www.bridgesabatapes.com/ "BRIDGES is a complete training program developed to help parents, teachers, physicians and other caregivers establish an Applied Behavior Analysis (ABA) program for children with autism."
Center for the Study of Autism http://www.autism.org/ "The Center for the Study of Autism (CSA) is located in the Salem/Portland, Oregon area. The Center provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. Much of our research is in collaboration with the Autism Research Institute in San Diego, California."
Chestor House http://www.chestorhouse.org Chestor House is a not for profit 501(c) (3) charitable organization that provides support services to individuals with autism and other developmental disabilities in managed residential settings.
Colorado Instuitute of Autism http://www.coloradoinstituteofautism.org/index.html Based in Colorado Springs.
Connections Center http://www.connectionscenter.com "ConnectionsCenter was founded by Clinical Psychologists and husband/wife team Dr. Steve Gutstein and Dr. Rachelle Sheely in Houston, Texas during 1995 as a multi-disciplinary program to develop innovative evaluation and intervention programs for people with relationship disorders."
Cure Autism Now http://www.canfoundation.org/ "Founded in 1995, the Cure Autism Now (CAN) Foundation is an organization of parents, clinicians and leading scientists committed to accelerating the pace of biomedical research in autism through research, education and outreach."
Doug Flutie Foundation for Autism http://www.dougflutiejrfoundation.org/ "From his experience on the football field, Doug Flutie understands the importance of support and teamwork. Doug and his wife Laurie started "Dougie's Team" in 1998 to honor their son Doug Jr., who has autism, and to help other families facing childhood autism through support and education."
Families for Early Autism Treatment http://www.feat.org/default.htm "FEAT is a non-profit organization of parents, educators, and other professionals dedicated to providing world-class Education, Advocacy and Support for the Northern California Autism Community."
LADDERS http://www.ladders.org/index.html LADDERS is an interdisciplinary program designed to provide services in the evaluation and treatment of children and adults with autism, pervasive developmental disorder and related disorders. Our approach is unique in that we address the overall needs of the child and family members by establishing a multidisciplinary therapeutic and programmatic goals of the autistic individual.
Relationship Development Center http://www.autismrelationship.com/index.htm What we do Individualized Relationship Development Assessments (RDAs). Written, customized Relationship Development Intervention (RDI) planning. Ongoing consultation and training.
Asperger Syndrome
Asperger Syndrome http://www.udel.edu/bkirby/asperger/ " As parents of children who are diagnosed with AS, we understand how essential is it that families of children diagnosed with Asperger Syndrome and related disorders, educators who teach children with AS, professionals working with individuals diagnosed with AS, and individuals with AS who are seeking support, have access to information."
Autism Asperger Publishing Company http://www.asperger.net/ The mission of the Autism Asperger Publishing Company (AAPC) is to "be your first source for practical solutions related to autism, Asperger Syndrome, and other pervasive developmental disorders."
Temple Grandin http://www.grandin.com/inc/ads.html Click on Links from Thinking in Pictures for information on her Autistic though processes. **See also Autism.org***
Cerebral Palsy
United Cerebral Palsy http://www.ucpa.org/ "UCP is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability."
Cerebral Palsy of Colorado http://www.cpco.org/ "Uniting with communities and people to build oppoertunities."
Dyslexia the Gift http://www.dyslexia.com/
Cleft Lip and Cleft Palate
The American Cleft Palate-Craniofacial Association http://www.cleftpalate-craniofacial.org/"The American Cleft Palate-Craniofacial Association (ACPA) is an international non-profit medical society of health care professionals who treat and/or perform research on birth defects of the head and face."
Cleft Palate Foundation http://www.cleftline.org/ "Optimizing the quality of life for individuals affected by facial birth defects."
Clefy Lip and Palate Institute http://www.craniofacialinstitute.com/index.htm " Weekly interdisciplinary team staffings provide coordinated treatment plans for children born with maxillofacial deformities. Team services are also provided for coordinated treatment planning for children with more extensive craniofacial deformities."
Cystic Fibrosis
Adult Cystic Fibrosis Clinic National Jewish Medical and Research Center http://www.njc.org/a12.html "National Jewish Medical and Research Center is known worldwide for treatment of patients with respiratory, immune and allergic disorders, and for groundbreaking medical research. Founded in 1899 as a nonsectarian, nonprofit hospital for tuberculosis (TB) patients, National Jewish remains the only facility in the world dedicated exclusively to these disorders."
CysticFibrosis.com http://www.cysticfibrosis.com/ "Join our Internet community for cystic fibrosis patients, families and loved ones."
Cystic Fibrosis Foundation http://www.cff.org/ "The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease."
National Cystic Fibrosis Awareness Committee http://www.cfawareness.org/ "...NCFAC exists to serve as an instrument for advancing the public's awareness of the genetic disease, Cystic Fibrosis."
Down Syndrome
Association for Children with Down Syndrome http://www.acds.org/ "The philosophy at ACDS is to integrate developmentally delayed children in a program which prepares them for schooling in the least restrictive environment."
Down Syndrome Quarterly http://www.denison.edu/dsq/ " Down Syndrome Quarterly is an interdisciplinary journal devoted to advancing the state of knowledge on Down syndrome and will cover all areas of medical, behavioral, and social scientific research
Mile High Down Syndorme http://www.mhdsa.org/ "It is the mission of Mile High Down Syndrome Association to enhance the quality of life for all individuals with Down syndrome by providing resources and support to those individuals, their families, professionals and the community."
National Down Syndrome Congress http://members.carol.net/~ndsc/index_nf.html " It is the mission of the National Down Syndrome Congress to be the national advocacy organization for Down syndrome and to provide leadership in all areas of concern related to persons with Down syndrome."
Dyslexia
Dyslexia Dyspraxia Attention Deficit Treatment http://www.ddat.org/
Dyslexia Institute http://www.dyslexia-inst.org.uk/ "The Dyslexia Institute (DI) is an educational charity, founded in 1972, for the assessment and teaching of people with dyslexia and for the training of specialist teachers. It has grown to become the only national dyslexia teaching organisation in the world."
The International Dyslexia Association http://www.interdys.org/index.jsp "The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them."Also available in Spanish.
Fragile X
FRAXA Research Foundation http://www.fraxa.org/ "Our mission is to support research aimed at treatment for Fragile X Syndrome."
JFX Partners http://www.jfkpartners.org/FragileXResearch.asp "The Fragile X Clinical and Research Program is staffed by a multidisciplinary, specialized team who provide the following services: medical evaluation and treatment; genetic counseling; developmental evaluation; psychological evaluation and treatment; occupational therapy evaluation and treatment; speech and language evaluation and therapy; and augmentative communication and computer evaluations."
Society for NeuroScience http://www.sfn.org/content/Publications/BrainBriefings/fragile.x.html
Incontinenta Pigmenti
Incontinentia Pigmenti International Foundation http://imgen.bcm.tmc.edu/IPIF/NINDS Incontinentia Pigmenti Information Page http://www.ninds.nih.gov/health_and_medical/disorders/inconpig_doc.htm
Vanderbilt Medical Center I. P. http://www.mc.vanderbilt.edu/peds/pidl/nutrit/incont.html
Multiple Sclerosis
International Multiple Sclerosis Support Foundation http://www.msnews.org/ "The International Multiple Sclerosis Support Foundation (IMSSF) is a Multiple Sclerosis 501(c)3 non-profit organization and is not affiliated nor supported by any other organization."
MS ActiveSource http://www.msactivesource.com
MS Foundation http://www.msfacts.org/ "Helping make a brighter tomorrow since 1986."
Multiple Sclerosis Society http://www.nmss.org/
Multiple Sclerosis Society- Colorado Chapeter http://www.fightmscolorado.org/
Sensory Integration
Sensory Integration Resource Center Home page http://www.sinetwork.org/ "Our vision is to help an international community of families and colleagues improve the quality of life for children, adolescents and adults with sensory integration dysfunction (DSI). Our mission is to post quality resources about sensory integration for individuals with SI problems as well as the family members, friends, therapists, physicians, teachers and researchers who care about and work with them."
Speech and Language
American Speech-Language-Hearing Association http://www.asha.org/ "Information about communication disorders for parents, family, media and others."National Aphaisa Association http://www.aphasia.org/ "The National Aphasia Association, NAA, is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families."
Colorado Speech-Language Association http://www.cshassoc.org/ "CSHA is devoted to promoting the interests of audiologists, speech-language pathologists and people impacted by communication disorders through collaboration, support, education, quality service and advocacy in Colorado."
Net Connections for Communication Disorders and Sciences http://www.mankato.msus.edu/dept/comdis/kuster2/welcome.html
"The Internet provides access to many valuable resources for professionals and students in communication disorders and sciences as well as for persons with communication disabilities and those who are part of their lives."Speech, Language, Hearing Center http://www.colorado.edu/CDSS/slhs/slhcenter.html
Stuttering
National Stuttering Association http://www.nsastutter.org/ "We invite you to find out more about the NSA, and discover our network of local chapters, our publications, and our activities for adults, children, teens, parents and professionals."
Stuttering Foundation of America http://www.stutteringhelp.org/ "The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering."
Stuttering Home Page http://www.mankato.msus.edu/dept/comdis/kuster/stutter.html
Stuttering Prevention http://www.prevent-stuttering.com/ "This site is dedicated to providing information about the nature of early childhood stuttering and ways to prevent its development."
Spinal Injuries
Spinal Cord Injury Information Network http://www.sci.rehabm.uab.edu/
Lesionado Medular http://www.lesionadomedular.com/
Spina Bifida
Spina Bifida Association of America http://www.sbaa.org/index.shtmlTourette Syndrome
The Facts about Tourette Syndrome http://members.tripod.com/~tourette13/Virtual Hospital-Tourette Syndrome http://www.vh.org/adult/patient/psychiatry/tourettesyndrome/index.html
Williams Syndrome
Williams Syndrome Foundation Homepage http://www.wsf.org/ "The Williams Syndrome Foundation (WSF) seeks to create or enhance opportunities in education, housing, employment and recreation for people who have Williams Syndrome and other related or similar conditions. The WSF identifies, initiates, funds and provides strategic guidance for major, long-range development projects, either by itself, or by cooperating with other organizations."
AIDS/Immune Deficiency
Center for AIDS Prevention Studies http://www.caps.ucsf.edu/capsweb/index.htmlHIV InSite http://hivinsite.ucsf.edu/ "Comprehensive, up-to-date information on HIV/AIDS treatment, prevention, and policy from the University of California San Francisco."
Immune Deficiency Foundation http://www.primaryimmune.org/ "Mission:To Improve the diagnosis and treatment of patients with primary immunodeficiency diseases through research and education."
Alzheimer's Disease
Alzheimer's Association http://www.alz.org/ "The Alzheimer's Association is your source for information, support and assistance on issues related to Alzheimer's disease."
Alzheimer's Disease Education & Refferal Center http://www.alzheimers.org/ "Use this site to find current, comprehensive Alzheimer's disease (AD) information and resources from the U.S. Government's National Institute on Aging (NIA)."
American Health Assistance Foundation http://www.ahaf.org/ "The American Health Assistance Foundation (AHAF) is a nonprofit charitable organization with over 25 years dedicated to: funding research on age-related and degenerative diseases, educating the public about these diseases, and providing emergency financial assistance to Alzheimer's disease patients and their caregivers."
Discussion Groups
ALZHEIMER Page http://www.biostat.wustl.edu/alzheimer/ "ALZHEIMER is an email discussion group for patients, professional and family caregivers, researchers, public policy makers, students and anyone with an interest in Alzheimer's or related dementing disorders in older adults."Diabetes
American Diabetes Association http://www.diabetes.org/Children with Diabetes http://www.childrenwithdiabetes.com/ "The online community for kids, families and adults with diabetes."
Parkinson's Disease
Awakenings http://www.parkinsonsdisease.com/ "The Internet focus on Parkinson's disease." *internal search engineNational Parkinson Foundation Inc. http://www.parkinson.org/ "A world-wide organization."
Neuroguide http://www.neuroguide.com/ "A searchable and browsable index of neuroscience resources available on the Internet."
National Institute of Stroke &
Neurological Disorders (NINDS). http://www.ninds.nih.gov/
" The nation's leading supporter of biomedical research on
disorders of the brain and nervous system."
National Resource Center http://www.neuro.pmr.vcu.edu/ "The mission of the National Resource
Center for Traumatic Brain Injury is to provide relevant, practical
information for professionals, persons with brain injury, and family
members. "
National
Stroke Association http://www.stroke.org/
Neuroguide.com
http://www.neuroguide.com/ "A searchable and browsable index of neuroscience
resources available on the Internet: Neurobiology, neurology,
neurosurgery, psychiatry, psychology, cognitive science sites and
information on human neurological diseases. "
Center for Neuro Skills
http://www.neuroskills.com/ "Leaders in brain injury
rehabiltation."
Oliver Sacks Homepage (Clinical
Neurologist & author)
http://www.oliversacks.com/
Society for Neruroscience
http://apu.sfn.org/
The Perspectives Network www.tbi.org "The Perspectives Network, Inc.'s primary focus is positive communication between persons with brain injury, family members/ caregivers/friends of persons with brain injury, those many professionals who treat persons with brain injury and community members in order to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury."
Neurological Publications
Journal of Neuroscience http://www.jneurosci.org/Brain Briefings http://www.sfn.org/briefings/ "The Brain Briefings newsletter series is prepared for a lay audience."
Brain Injury
Acute Brain Injury Guide for Family and Friends http://www.vh.org/adult/patient/neurosurgery/braininjury/
Brain Injury Association USA Home Page http://www.biausa.org/ "The Brain Injury Association of America was founded in 1980 by a group of individuals who wanted to improve the quality of life for their family members who had sustained brain injuries."Brainlash http://www.brainlash.com
The Brain Trust http://www.the-brain-trust.org/ "To provide emergency funds for essential goods and services for persons with mild/moderate traumatic brain injury and to promote education about brain injury. "
Tramatic Brain Injury Resources http://curry.edschool.virginia.edu/sped/projects/ose/categories/tbi.html
Tramatic Brain Injury Survival Guide http://www.tbiguide.com/
Behavior On-line
http://www.behavior.net/index.html "... the gathering place
for Mental Health and Applied Behavioral Science Professionals."
National Institute of Mental Health http://www.nimh.nih.gov
Substance Abuse and Mental Health
Services Association http://www.samhsa.gov/ "SAMHSA is An Agency of the
U.S. Department of Health & Human Services."
Anxiety Disorders
Anxiety Disorders Association of America http://www.adaa.org/ "Resources for anxiety disorder sufferers, family members, and other interested parties."Anxiety and Depression Resource Organization http://www.freedomfromfear.org/ Also in Spanish
Obsessive Compulsive Foundation http://www.ocfoundation.org/ "The Obsessive-Compulsive Foundation (OCF), with more than 10,000 members, is an international not-for-profit organization composed of people with obsessive compulsive disorder (OCD) and related disorders, their families, friends, professionals and other concerned individuals."
Eating Disorders
The Cedric Centre http://www.compulsiveeating.com "Self-Respect, Integrity, Authenticity, and Compassion."Eating Disorder Referral Information Center http://www.edreferral.com "Our goal is to provide assistance, in the form of information and resources, to those suffering with eating disorders to get them started on the road to recovery and healthy living."
S.C.a.R.E.D. http://www.eating-disorder.org "This site explores the issues of eating disorders and offers on line support resources. It contains information, books, web site links and other useful resources. Be sure to see our sitemap to assist you in finding what you're looking for."
Posttramatic Stress Disorder
Sidran Foundation http://www.sidran.org/ "It is a national non-profit organization dedicated to supporting people with traumatic stress conditions, providing education and training on treating and managing traumatic stress, providing trauma-related advocacy, and informing the public on issues related to traumatic stress. Sidran is also a leading publisher of books about traumatic stress."
National Center for PTSD http://www.ncptsd.org/ The "National Center for Post-Traumatic Stress Disorder (PTSD) was created within the Department of Veterans Affairs in 1989, in response to a Congressional mandate to address the needs of veterans with military-related PTSD."
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